Thursday, November 1, 2007

November is Epilepsy Awareness Month!

10% of all sales through the month of November will be donated to the Epilepsy Foundation!
There is many ways to manage epilepsy, but there is currently no cure!

This foundation is near and dear to us because our daughter was diagnosed with Epilepsy when she was 16 months old.

Here is our daughter's story. (This is also posted on the front of my website)

When our daughter was 13 months old she got quite sick. High fever,no energy,lack of appetite,vomiting. On the 2nd day of battling this she had a eye doctor appt. While she was sitting in my lap I felt her get very stiff. I turned her around and she was turning purple. I quickly ran up to the counter where a not so nice lady was on the telephone. I said loudly that something was wrong with my daughter and she put her finger up as a way of telling me to hold on just a minute. You could clearly see that there was something wrong with my daughter. After getting louder and louder and also crying at this point other employees came running up front and took her from me and laid her on the desk. They surrounded her and would not let me see what was going on. At this time I had never witnessed a seizure. After a few minutes she stopped seizing. They let me carry her to a back room and explained to me what was going on. She was sleeping at this point. That is a normal thing for someone to do afterwards. Our pediatrician was right down the road so they were nice enough to squeeze us in so they could take a look at her. In the end they just told us that it was a febrile seizure cause she was sick and that she would probably never have another one. For peace of mind they sent us to the lab at the hospital to get her blood drawn to see if there was indeed an underlying issue. I no longer got her our to our vehicle from getting her blood drawn and she had another one. This time I was by myself and freaking out. I raced home and called the doctor and told me to take her to the hospital immediately. My husband was out of town on business so I had to track him down. Went to the ER and sat there while they ran tests. She was so miserable there. Shortly before they were just going to send us home, she has another one. They admitted her after that. After 3 days in the hospital, a ton of tests later they diagnosed her with Rotavirus and sent us home. Again we were told that she would more than likely never have seizures. 3 months went by, she was 16 months old now and she was still perfect, one morning we get up and start our routine and she just fell over and started seizing. We called 911 and they took her to the hospital where she got admitted again. After even more tests they could not give us any answers and diagnosed her with epilepsy. They gave us medication that she has to take everyday and sent us on our way. After that it was such a roller coaster. Every 6 weeks give or take she would have more seizures. When she would seize she would always have 3 in a day. Many more trips to the hospital, more tests they still had no answers so they put her on a 2nd medication. Her last seizure was on October 29th, 2006. So she has been seizure free for 1 year now. She has to go 2 years completely seizure free before she can be off her medication. We will start in April 2008 by weaning her off 1 medication, then in October 2008 as long as everything is ok, we will start weaning her off her other medication. She is now 3 1/2 months away from being 3 years old. It is so nice to see her grow and develop right on track considering everything she has been through in such a short time.

1 comment:

Jill said...

Wow...I never knew that story...
I think I told you my brother was diagnosed with epilepsy when he was 6 years old. a year ago in January, he had the brain surgery. He has been seizure free for almost a year now. remarkable...
keep yup the good work with the donations!